Williams syndrome

Williams syndrome is a rare genetic condition (estimated to occur in 1/7,500 births) that causes medical and developmental problems. Williams syndrome is associated with an unusual pattern of strengths and weaknesses in linguistic and cognitive profiles, as well as intellectual disability. It is present at birth and affects males and females equally. It can occur in all ethnic groups and has been identified in countries throughout the world.

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Services and Programs

ACM Lifting Lives Music Camp
A weeklong residential camp where campers participate in a songwriting workshop, recording session, songwriter's night and a live performance on the stage of the Grand Ole Opry.
Arts Program at the Vanderbilt Kennedy Center
Programs include exhibits by artists with disabilities and activities for people with disabilities to practice and express themselves through art.
Research Family Partners
Research Family Partners is a program that helps families connect with Vanderbilt Kennedy Center research studies in which they may be interested in taking part.
Tennessee Disability Pathfinder - An internet community and statewide helpline
Phone, web, and print resources in English and Spanish to connect the Tennessee disability community with service providers. Referral services, free of cost, are provided to persons with disabilities, family members, service providers, and advocates.
Tennessee Kindred Stories of Disability
Families, friends and service providers share their stories about people living with disability in Tennessee.

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Printable Resources and Materials

Williams Syndrome Tip Sheet

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Links and Resources

The Williams Syndrome Association
The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.

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StudyFinder - Participate in a study related to Williams syndrome

Vanderbilt Kennedy Center researchers need subjects to complete the studies listed below.

Williams Syndrome Research: A whole person approach

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Video, Podcast and Images

Williams Syndrome Video Tip Sheet
2009 VKC Music Camp, Image Gallery
Country music artists LeAnn Rimes and Kix Brooks visited the 2009 Vanderbilt Kennedy Center Music Camp.

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