Vanderbilt Kennedy Center

Research and Disability Topics

Quickly find related research information, services, training, news, video, podcasts, upcoming events, links and other resources that the Vanderbilt Kennedy Center website has related to these topics.

Fragile X syndrome

Fragile X syndrome is the most common cause of inherited intellectual disability. Symptoms of fragile X include: mental impairment, ranging from learning disabilities to intellectual disability; attention deficit and hyperactivity; anxiety and unstable mood; autistic-like behaviors; and specific physical characteristics. Seizures (epilepsy) affect about 25% of people with fragile X.

Resources:

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Services and Programs

  • Family Outreach Center
    Disability-specific programs associated with the Vanderbilt Kennedy Center and other organizations at Vanderbilt provide a broad range of treatment, research, technical assistance, education, and outreach services.
  • Arts Program at the Vanderbilt Kennedy Center
    Programs include exhibits by artists with disabilities and activities for people with disabilities to practice and express themselves through art.
  • Fragile X Clinic
    The Vanderbilt Fragile X Clinic is a new clinic providing resources for individuals and families affected by fragile X. The clinic is part of the National Fragile X Foundation Clinics Consortium.
  • Tennessee Disability Pathfinder - An internet community and statewide helpline
    Phone, web, and print resources in English and Spanish to connect the Tennessee disability community with service providers. Referral services, free of cost, are provided to persons with disabilities, family members, service providers, and advocates.
  • Tennessee Kindred Stories of Disability
    Families, friends and service providers share their stories about people living with disability in Tennessee.

Printable Resources and Materials

  • Fragile X Research Foundation
    FRAXA's mission is to accelerate progress toward effective treatments and a cure for Fragile X, by funding the most promising research.
  • National Institute of Child Health and Human Development (NICHD)
    The NICHD, established by congress in 1962, conducts and supports research on topics related to the health of children, adults, families, and populations.
  • The National Fragile X Foundation
    The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X.

Video, Podcast and Images

  • Testing Animal Models of Human Disorders: Oh Assay Can You See ...

    March 27, 2014
    Participant Recruitment and Assessment Core Training Series
    * Moderator Evon Batey Lee, Ph.D., Associate Professor of Pediatrics, Psychology, and Psychiatry; VKC Psychological Assessment Coordinator; UCEDD Training Director; LEND Program Associate Director
    * Jeremy Veenstra-VanderWeele, M.D., Assistant Professor of Psychiatry, Pediatrics, and Pharmacology; Medical Director, Treatment and Research Institute for Autism Spectrum Disorders (TRIAD); Director, Fragile X Treatment Research Program; Director, Division of Child and Adolescent Psychiatry
    * Elizabeth Hammock, Ph.D., Instructor, Pediatric Endocrinology
    * Gregg Stanwood, Ph.D., Assistant Professor of Pharmacology

  • Community Forum: What's on the Forefront of Fragile X Syndrome Research?

    June 20, 2011

    Fragile X syndrome is one focal point of work at the Vanderbilt Kennedy Center. Family members and friends, researchers, clinicians, students, community professionals, and disability advocates are invited to this evening forum to learn how the Vanderbilt Kennedy Center is advancing understanding of Fragile X syndrome.

In the News