Fragile X syndrome

Fragile X syndrome is the most common cause of inherited intellectual disability. Symptoms of fragile X include: mental impairment, ranging from learning disabilities to intellectual disability; attention deficit and hyperactivity; anxiety and unstable mood; autistic-like behaviors; and specific physical characteristics. Seizures (epilepsy) affect about 25% of people with fragile X.

Services and Programs

Family Outreach Center and Disability Services
Disability-specific programs associated with the Vanderbilt Kennedy Center and other organizations at Vanderbilt provide a broad range of treatment, research, technical assistance, education, and outreach services.
Arts and Disabilities at the Vanderbilt Kennedy Center
Programs include exhibits by artists with disabilities and activities for people with disabilities to practice and express themselves through art.
Best Buddies
Best Buddies Colleges pairs people with intellectual disabilities in one-to-one friendships with college students.
Fragile X Clinic
The Vanderbilt Fragile X Clinic is a new clinic providing resources for individuals and families affected by fragile X. The clinic is part of the National Fragile X Foundation Clinics Consortium.
Shriver Transitions and Sports Camp for People with Disabilities
Summer camp experience for students with developmental disabilities between the ages of 16 and 22. The camp offers tools to guide campers toward self-empowerment, realization of life goals, and real techniques to achieve a full and independent life.
Tennessee Disability Pathfinder - An internet community and statewide helpline
Phone, web, and print resources in English and Spanish to connect the Tennessee disability community with service providers. Referral services, free of cost, are provided to persons with disabilities, family members, service providers, and advocates.

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Printable Resources and Materials

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Links and Resources

Fragile X Research Foundation
FRAXA's mission is to accelerate progress toward effective treatments and a cure for Fragile X, by funding the most promising research.
National Institute of Child Health and Human Development (NICHD)
The NICHD, established by congress in 1962, conducts and supports research on topics related to the health of children, adults, families, and populations.
The National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X.

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