Fragile X syndrome
Fragile X syndrome is the most common cause of inherited intellectual disability. Symptoms of fragile X include: mental impairment, ranging from learning disabilities to intellectual disability; attention deficit and hyperactivity; anxiety and unstable mood; autistic-like behaviors; and specific physical characteristics. Seizures (epilepsy) affect about 25% of people with fragile X.
Resources:
Services and Programs
- Family Outreach Center
Disability-specific programs associated with the Vanderbilt Kennedy Center and other organizations at Vanderbilt provide a broad range of treatment, research, technical assistance, education, and outreach services. - Arts Program at the Vanderbilt Kennedy Center
Programs include exhibits by artists with disabilities and activities for people with disabilities to practice and express themselves through art. - Fragile X Clinic
The Vanderbilt Fragile X Clinic is a new clinic providing resources for individuals and families affected by fragile X. The clinic is part of the National Fragile X Foundation Clinics Consortium. - Tennessee Disability Pathfinder - An internet community and statewide helpline
Phone, web, and print resources in English and Spanish to connect the Tennessee disability community with service providers. Referral services, free of cost, are provided to persons with disabilities, family members, service providers, and advocates. - Tennessee Kindred Stories of Disability
Families, friends and service providers share their stories about people living with disability in Tennessee.
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Printable Resources and Materials
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Links and Resources
- Fragile X Research Foundation
FRAXA's mission is to accelerate progress toward effective treatments and a cure for Fragile X, by funding the most promising research. - National Institute of Child Health and Human Development (NICHD)
The NICHD, established by congress in 1962, conducts and supports research on topics related to the health of children, adults, families, and populations. - The National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to
Enrich lives through educational and emotional support,
Promote public and professional awareness, and
Advance research toward improved treatments and a cure for Fragile X.
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StudyFinder - Participate in a study related to Fragile X syndrome
Vanderbilt Kennedy Center researchers need subjects to complete the studies listed below.
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- Community Forum: What's on the Forefront of Fragile X Syndrome Research?
June 20, 2011
Fragile X syndrome is one focal point of work
at the Vanderbilt Kennedy Center. Family
members and friends, researchers, clinicians,
students, community professionals, and
disability advocates are invited to this evening
forum to learn how the Vanderbilt Kennedy
Center is advancing understanding of Fragile
X syndrome.
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In the News
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