Vanderbilt Kennedy Center

Studies related to Intellectual and developmental disabilities

Current as of 5/21/2013

For questions or help regarding how to use StudyFinder, please contact Lynnette Henderson, Ph.D.

Overview

Click on the study title below to receive contact information, brochures and more in-depth information.

Brain Imaging Study of Adults with Down Syndrome

    Looking for:

    Adults with Down syndrome between 30 and 75 years old

    Compensation:

    $20/hour for study tasks.

read more about this study


Clear Talk Project

    Looking for:

    Children with Down syndrome

    ages 5 to 12 years old

    Compensation:

    Intervention and evaluations at no cost and $50 for completing the study.

read more about this study


Do you have a child with autism and a new baby? Early Detection of Developmental Disorders

    Looking for:

    • Babies between 16 months and 30 months old
    • who have an older brother or sister with ASD

    Compensation:

    Families will be paid for their time up to $215.

read more about this study


Fragile X Medication Study for Children

    Looking for:

    Children with a confirmed diagnosis of Fragile X between 3 and 11 years.

    Compensation:

    Compensation for travel, visits, evaluations and medication.

read more about this study


Genetic Studies in Autism Spectrum Disorders

    Looking for:

    Persons with Autism Spectrum Disorders 4-22

    Compensation:

    $150 / family upon completion

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How do brain waves affect thinking skills and behavior in children with ASD?

    Looking for:

    Three to seven year old children with ASD, with and without intellectual disability

    Compensation:

    up to $150, depending on which visits you complete

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Iron Treatment of Sleep Disorders in Children with Autism Spectrum Disorder

    Looking for:

    Children with ASD, 2 to 10 years-old, who have trouble falling asleep or staying asleep.

    Compensation:

    1 hour of individualized education with a sleep educator & compensation for your time

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KIDTalk: Is your child with autism having trouble talking?

    Looking for:

    5 to 8 year old children with autism spectrum disorder who have made limited progress in spontaneous expressive language after at least 1 year of intervention.

    Compensation:

    Assessments of language and cognitive skills and evidence-based communication intervention at the child’s school at no cost to you.

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Medication Study for Adolescents and Adults with Fragile X

    Looking for:

    Adults age 16– 50 with Fragile X for a study using an investigational drug.

    Compensation:

    Evaluations, study visits, and study drug are provided at no cost. Compensation for transportation will be provided.

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Medication Study for Adolescents with Fragile X and behavior problems

    Looking for:

    Adolescents (12-17 years old) with Fragile X syndrome

    Compensation:

    Compensation for time and travel.

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Medication Study for Angelman syndrome: L-dopa Phase II Trial

    Looking for:

    4 to 12 year old children with Angelman syndrome

    Compensation:

    Medical and psychological evaluations and reports

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Medication Study for Children with Autism

    Looking for:

    We are looking for children ages 6-12 with Autism, Asperger’s Syndrome, or PPD-NOS.

    Compensation:

    Study evaluations and medicine at no cost.

read more about this study


Social Withdrawal in Fragile X: Can medication help adolescents and young adults?

    Looking for:

    Adolescents and young adults (12-25 years old) with Fragile X syndrome

    Compensation:

    $25 per visit in a check mailed to your home

read more about this study


Survey on Development in Children and Adolescents with Down Syndrome

    Looking for:

    Parents of children with Down syndrome between 5 and 30 years old

    Compensation:

    We are grateful to all who agree to participate.

read more about this study


Survey on Television Habits of Children with Autism Spectrum Disorder

    Looking for:

    Parents of children 2 to 16 years old with an autism spectrum disorder

    Compensation:

    Information about what we discover will be shared with you.

read more about this study


Trajectories of Phenotypic behavior in Persons with Prader-Willi Syndrome

    Looking for:

    Individuals with PWS, ages 4 years and up

    Compensation:

    yes, call for details

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Transitioning to Adulthood with Autism

    Looking for:

    Youth with a diagnosis on the autism spectrum who are in their last year of high school or planning to leave high school within the next 12 months.

    Compensation:

    $40 for each visit and a report of the evaluation

read more about this study


Vanderbilt Natural History Study of Epilepsy in Children with Autism Spectrum Disorders

    Looking for:

    Children with ASD and epilepsy or suspected epilepsy

    who are 3 to 10 years old

    with or without an intellectual disability

    Compensation:

    up to $55, depending on which visits you complete

read more about this study


Williams Syndrome Research: A whole person approach

    Looking for:

    Persons with Williams Syndrome

    Compensation:

    varies

read more about this study