Overview

Click on the study title below to receive contact information, brochures and more in-depth information.

"Does your child do that?" Survey of Parents about their child's behaviors

Looking for:

Parents of children with developmental differences or disabilities

Compensation:

none

African American Alzheimer's Disease Study

Looking for:

• People with a diagnosis of Alzheimer’s who have more than minor memory problems
• The spouse of an individual with Alzheimer's disease
• Anyone over 60 without memory problems as part of the comparison group

Compensation:

Compensation for your time will be provided.

Alzheimers Disease Studies

Looking for:

Three types of families:

• Families with at least two individuals who have AD usually brothers or sisters
• Families with one person with AD and a brother, sister or spouse with no AD
• Families with Adults over 60 with no family history of AD

Compensation:

none

Behavior and Development in Persons with Prader-Willi Syndrome

Looking for:

Individuals with PWS, ages 4 years and up

Compensation:

yes, call for details

Genetics of Age-related Macular Degeneration

Looking for:

• Adults over 55 years
• with and without AMD

Compensation:

none

Longitudinal Study of Person with Urea Cycle Disorders

Looking for:

Persons of any age, with or suspected of having, a urea cycle disorder

Compensation:

No cost evaluations and travel expenses are provided

Survey of Statewide Needs for Services in Developmental Disabilities

Looking for:

• Adults with or without disabilities
• Parents of children with disabilities
• Adults who work with persons with disabilities
• People who care about the welfare of people with disabilities

Compensation:

none

Telling our Story: Angelman syndrome Natural History Study

Looking for:

• Persons with Angelman syndrome
• from birth to 60 years old
• diagnosed with or without genetic proof

Compensation:

Yearly evaluations, with reports, at no cost

TRIAD Research Project:Simons Simplex Collection Project at Vanderbilt University

Looking for:

We are looking for families with:

• One child with an ASD diagnosis, age 4-17
• One or more other children without an ASD diagnosis, age four or older
• Both biological parents willing to participate

Compensation:

Families will receive a thorough diagnostic/behavioral report and monetary compensation for their participation.

Tummy Troubles: MET Tyrosine Kinase and Autism Spectrum Disorder (ASD)

Looking for:

• Individuals with ASD
• who are 5 to 17 years old,
• who do and do not have tummy troubles.

Compensation:

$50 (checks mailed to participating family)

Williams Syndrome Research: A whole person approach

Looking for:

Persons with Williams Syndrome

Compensation:

varies