Last Updated: Friday, March 29, 2013
Principal Investigator: Robert Hodapp, Ph.D.
Other researchers: Richard Urbano, PhD, Elizabeth Dykens, Ph.D., Darlynne Devenny, Ph.D., Karen Amble, M.S.W., Anna Matthews, M.Sc.
We are interested in knowing about the course of development of your child with Down syndrome. Development does not always proceed through a smooth course. Life experiences and certain behaviors may have influenced the course of development of your child with Down syndrome.
We are particularly interested in knowing about those children who have experienced set-backs in development that are either temporary or long-lasting. We are also interested in knowing how many children, adolescents and young adults show behaviors that may interfere with their development.
We are asking that parents of children with Down syndrome who are between the ages of 5 and 30 years take time to answer our questions about their child’s development.
The survey will take between 30 and 45 minutes to complete and all responses to questions will be anonymous. We do not collect any identifying information and we cannot trace responses back to an email address.
Your answers to the questions on the survey will be helpful in understanding how individuals with Down syndrome vary and how behaviors and experiences influence development.
Parents of children with Down syndrome between 5 and 30 years old
We are grateful to all who agree to participate.
none-- online survey
Darlynne Devenny, Ph.D.