Vanderbilt Kennedy Center

Resources for Specific Disabilities

Links to resources that are useful for specific types of disabilities, for both families and professionals (you can also find resources like these by browsing topics)

American Association on Intellectual and Developmental Disabilities (AAIDD)

The professional association run by and for professionals who support people with intellectual and developmental disabilities.

Angelman Syndrome Foundation (ASF)

ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties.

Autism Society of America

ASA is the nation’s leading grassroots autism organization, and exists to improve the lives of all affected by autism.

Autism Speaks

Autism-related resources regarding advocacy, family services, community oureach, charity events, research and more.

Autism Speaks - First 100 Days Kit

A tool kit to assist families in getting the critical information they need in the first 100 days after an autism diagnosis.

Autism Speaks: Video Glossary

Free, web-based tool designed to help parents and professionals learn more about the early red flags and diagnostic features of autism spectrum disorders (ASD).

Autism Speaks: Walk Now for Autism

Autism Speaks' Walk Now for Autism is North America's largest grassroots autism walk program and our signature fundraising and awareness event. Join us at one of our walks across the United States, Canada or the United Kingdom.

Autism Tennessee - Formerly Known As: Autism Society of Middle Tennessee

Monthly workshops, orientations, annual conferences, support groups, referral to local resources, phone support, educational and legislative advocacy, public awareness opportunities and trainings, and an active involvement in the larger disability community.

Children and Adults with Attention Deficit Disorders (CHADD)

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit organization providing education, advocacy and support for individuals with AD/HD.

Foundation for Angelman Syndrome Therapeutics (FAST)

Organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy. The Foundation is committed to assisting individuals living with Angelman Syndrome to realize their full potential and quality of life.

Genetics Home Reference

Genetics Home Reference provides consumer-friendly information about the effects of genetic variations on human health.

Learning Disabilities Association of America

Since 1963, LDA has provided support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.

Mayer Johnson - The building blocks for learning and human expression

Mayer Johnson offers software products to families and professionals for symbol-based communication and education.

National Alliance on Mental Illness (NAMI)

NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country.

National Down Syndrome Congress

The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

National Down Syndrome Society

The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

Special Olympics

Special Olympics is an international organization dedicated to empowering individuals with intellectual disabilities to become physically fit, productive and respected members of society through sports training and competition. Special Olympics offers children and adults with intellectual disabilities year-round training and competition in 26 Olympic-type summer and winter sports.

Tennessee Technical Assistance and Resources for Enhancing Deafblind Supports (TREDS)

A federally funded program designed to equip families, educators, and other professionals with the knowledge and skills needed to improve outcomes for individuals from birth through age twenty-one who have both vision and hearing impairments.

The Arc of the United States

The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals and includes over 140,000 members affiliated through more than 850 state and local chapters across the nation.

The National Fragile X Foundation

The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X.

The National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

The Prader-Willi Syndrome Association

PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

The Williams Syndrome Association

The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. The WSA supports research into all facets of the syndrome, and the development of the most up to date educational materials regarding Williams syndrome.

United Cerebral Palsy (UCP)

United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

See Also...

Vanderbilt Kennedy Center Links

  • Disability and Research Topics
    Topic-related searching and quick access to Vanderbilt Kennedy Center research, services, and training information, as well as news, media and printed materials.