Vanderbilt Kennedy Center

Primary care for adults with IDD addressed with Health Care E-Toolkit

Updated on 6/3/2013 9:58:00 AM.

Source: Vanderbilt Kennedy Center

U.S. adults with intellectual/developmental disabilities (IDD) encounter substandard health care. Few physicians are experienced in caring for adults with IDD, and medical programs provide minimal disability training. A population with a higher prevalence of adverse conditions is faced with inadequate attention to care needs, inadequate focus on health promotion, and inadequate access to health care services, a “cascade of disparities.”

To address these problems, health professionals in Canada developed Consensus guidelines and a toolkit for primary care providers. The VKC University Center of Excellence in Developmental Disabilities (UCEDD), led by principal investigator Elise McMillan, received a 1-year grant from the Special Hope Foundation to produce a Developmental Disabilities Health Care E-Toolkit, adapting the Canadian toolkit for U.S. healthcare. The VKC is collaborating with the UT Boling Center and the TN Dept. of Intellectual and Developmental Disabilities.

"As more individuals with intellectual and developmental disabilities live longer lives and move into communities across Tennessee, there is a desperate need for more information for health care professionals seeing them in their practices,” McMillan said. “This project will help provide that information and support."

For more information on the Developmental Disabilities Health Care E-Toolkit, contact project coordinator Janet Shouse.

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