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National Health Care Resources

Behavior Resources

The Behavior Analyst Certification Board provides a database to search for Certified Behavior Analyst in your area.

The Tennessee Association for Behavior Analysis aims to advance awareness, development, and access to the practice of behavior analysis in the state of Tennessee.

Dental Care

All children, especially those with special health care needs, should see a Pediatric Dentist for their first dental visit by 12 months of age. Children with special needs between the ages of one and twelve years, depending on the type of practice, can be seen as new patients in most pediatric dentistry offices. Patients with special needs ages 12 and older can be seen as new patients in some General Dentistry offices, especially those with advanced training in General Practice Residencies and Hospital Dentistry. Others are followed by Hospital Dental Programs with emphasis on Hospital Dentistry. Courtesy of Dr. Edwin Turner, former professor and director of pediatric dentistry at Vanderbilt University.

Dentistry for the Disabled Child and Adults
Provides information on finding a good dentist for your disabled child/adult, levels of anesthesia to control behavior, tooth brushing for disabled people, Bruxism (grinding of teeth), and educational materials.

Reproductive Health and Sexuality Education

The Boling Center on Developmental Disabilities has a Reproductive Health Clinic that provides medical care to teens and adults with developmental disabilities. Health and Socialization Groups serve persons with intellectual disabilities. Groups meet monthly. They discuss interpersonal relationships, sexually transmitted diseases, appropriate dating practices, birth control concerns, and domestic abuse.

Disability Services ASAP (A Safety Awareness Program), a Texas program, has an extensive Resource List of materials on disability and sexuality, abuse, and violence prevention.

The Eric Clearinghouse on Disabilities and Gifted Education (ERIC EC) offers information on sex education and students with disabilities.

Family Village has a Sexuality and Disabilities page that includes tips on how to talk about sexuality with young people with disabilities. A Disability and Sexual Orientation page focuses on people with disabilities who are gay, lesbian, bisexual, or transgender (GLBT).

"Healthy Relationships and Safe Sex Tips for Self Advocates" (PDF) is a handbook available for self-advocates that discusses healthy friendships, romantic relationships, and safe sex.  This handbook is written by Joe Meadours, an accomplished self-advocate from Alabama. It sells for $15.

The Junior League Family Resource Center at Vanderbilt Children's Hospital offers books, videos, and other resources regarding sexuality and disability. Their library catalog also lists relevant websites.

NICHY Connections, a web resource page of the National Dissemination Center for Children with Disabilities, lists sources of information on sexuality education for young people with disabilities.

The Pacer Center's "Project Youth - Health Resources" includes publications on sexuality.

Parents with Disabilities Online offers The Parenting Book for Persons with a Disability and more.

Planned Parenthood provides information about sexuality education for people with disabilities. Contact a local Planned Parenthood program or visit the Planned Parenthood website for a list of resources.

Sexuality Education for Children and Youth with Disabilities, published by The National Center for Information on Children and Youth with Disabilities.

The Sexuality Information and Education Council of the United States (SIECUS) offers an annotated bibliography on sexuality and disability.

Ten Tips for Talking About Sexuality with Your Child Who Has Developmental Disabilities by Lisa Maurer, MS, CFLE, ACSE, Consultant and Trainer.

Planned Parenthood of Middle and East Tennessee can train people to teach about sexuality to persons with developmental disabilities.
The following Tennessee-based websites provide general information about health care:

Women's Health Care Resources

Center for Research on Women with Disabilities provides links to information on health care for women with disabilities. It includes links to reproductive health maintenance for women with disabilities, research and studies on women with disabilities, health and wellness for women with disabilities, access to health care for women with disabilities, abuse and women with disabilities, community living, and educational materials.

"Table Manners and Beyond: The Gynecological Exam for Women with Developmental Disabilities and Other Functional Disabilities" provides useful information about pelvic and breast exams, including how to reduce stress. It also provides information for midwives, birth control, midlife issues and has a sample questionnaire
U.S. Department of Health and Human Services: Provides link to health resources for people with disabilities.

The following organizations offer general disability information

Association of University Centers on Disabilities, (AUCD) A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Bright Futures offers a practical developmental approach to providing health supervision for children of all ages.

National Center on Birth Defects and Developmental Disabilities

Child Nett.tv is a unique internet web channel dedicated to Autism and other neurological disorders.

DisabilityInfo.gov offers information on health care services and programs available through the federal government.

Family Village

Family Voices works on behalf of children with specific health care needs.
Health Care Transition for Youth with Disabilities and Special Needs: An e-mail Special Interest Group to exchange of ideas and information. It is for health professionals, youth and their family members, policy makers, insurers, and others. Members share knowledge and experience in the transition of youth from child-centered (pediatric) to adult-oriented health care.

Health Issues and Developmental Disabilities, a collection of resources from the Boling Center for Developmental Disabilities.

Institute for Family-Centered Care promotes leadership to advance the practice of family centered care. This is a good resource for policy makers, administrators, program planners, direct service providers, educators, and family members.

KidsHealth is for parents, kids, and teens from the medical experts of the Nemours Foundation.

Children with Special Health Care Needs

National Association of Children's Hospitals and Related Institutions provides a search resource to help families find hospitals in their area or with specific programs and services.

National Rehabilitation Information Center (NAIRC)

National Resource Center for Traumatic Brain Injury provides information for professionals, persons with brain injury, and family members.

National Center on Birth Defects and Developmental Disabilities

 Tennessee Health Care Information Resources

The following Tennessee-based organizations offer general information on health care (see the National Health Care Information page for additional resources on this subject):

Cumberland Pediatric Foundation promotes the health care of children of the Cumberland Region. Members work to improve the quality of care, to increase efficiency, and to lower the cost of delivering pediatric health care services. Their web site includes information for parents, children, and a library.

Junior League Family Resource Center at Vanderbilt Children’s Hospital provides information and resources for families and health care providers to help them understand medical conditions and how they affect children. The Center trains and assists families in using resources and supports family-to-family networks. The Center also offers a Health Library and Health Tips.

Family Voices of Tennessee is a Tennessee grassroots network of families and friends speaking on behalf of children with special health care needs.