Tennessee Kindred Stories of Disability

A collection of stories from individuals with disabilities, families, friends, and disability service providers in Tennessee



45 Stories Found

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Morgan (38), Autism, Dickson County

It would be a huge relief to us if we knew for a certainty that a plan was in place and fully funded to take care of our very dear son when we can no longer assume responsibility. ”

Adam (18), ADHD, Montgomery County

Through his work, he can share his talent and help others. ”

Marina (11), Intellectual Disability, Davidson County

Marina’s time at school is crucial to her daily schedule and to her life in the community. ”

Chioma (10), Autism, Davidson County

My accent should not matter when it comes to getting services for my daughter.”

Seth (23), Autism, Williamson County

If Seth had waiver services, everything would change. He would have something to look forward to and something to do. ”

Louie (13), Angelman syndrome, Davidson County

We have services now but we pay for everything out of pocket. ”

Mark (42), Autism, Davidson County

I feel like if we got waiver services today it would be like being let out of prison. ”

Darren (40), Other, Montgomery County

I can’t even remember how long we have been on the waiting list. During that time life has just been so hard. I worry all the time. ”

Christopher (18), Cerebral Palsy, Shelby County

It’s overwhelming to go to the school, and feel like you have to get down on your hands and knees and beg for services you know your children should have. ”

Jess (25), Down syndrome, Shelby County

That is probably the biggest worry of any parent who has a child with special needs. You want them to outlive you in one sense, but then you wonder what will happen. ”

John (55), Intellectual Disability, Shelby County

My biggest complaint is that people like us need help. Whenever they [policymakers] go to cut that budget it’s always the people with disabilities who get hurt by it. They’re the ones that need it. They can’t do for themselves. I don’t think that’s right.”

Danny (55), Other, Shelby County

With him [Danny] being 55-years-old, it’s not like it was when he was born. Now, there’s help. There are programs and suggestions, but when he was born there was nothing.”

Kaden (1), Other, Loudon County

We have been through a lot of doctors, and we’ve finally found the ones I like. None of them say, “He can’t do this” or “He won’t be able to do that.” None of them have ever said that because I wouldn’t go back to them if they did. ”

Lauren (21), Autism, Blount County

Why can’t schools treat people with disabilities like they have a future?”

Grayson (21), Cerebral Palsy, Cumberland County

After a certain point you say this is what we are. Let’s just be a family and let’s just live.”

Joshua (8), Other, Hamilton County

I don’t want to burden Joshua, but at the same time I want him to know he is a part of his success story. ”

Margo (27), Katherine Ann (25), developmentally delayed, Shelby County

I am not a planner but my sister and my niece wish that I was since they might be guardians one day. I must plan for the future care of my daughters. This is very hard for me. ”

Michael (39), Intellectual Disability, Scott (35), Intellectual Disability Cumberland County

We knew our sons needed to live apart from us before it was a forced event. ”

Jennifer (21), Other, Hamblen County

There seems to be resources out there but unless you are lucky enough to have some other parent tell you, you will go for years without knowing what is available.”

Cassidy (13), Other, Shelby County

It is easy to feel alone.”

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