Tennessee Kindred Stories of Disability

A collection of stories from individuals with disabilities, families, friends, and disability service providers in Tennessee



19 Stories Found

Showing stories 1 - 19 of 19

Results related to: Future Concerns / Parent

Seth (23), Autism, Williamson County

If Seth had waiver services, everything would change. He would have something to look forward to and something to do. ”

Louie (13), Angelman syndrome, Davidson County

We have services now but we pay for everything out of pocket. ”

Mark (42), Autism, Davidson County

I feel like if we got waiver services today it would be like being let out of prison. ”

Darren (40), Other, Montgomery County

I can’t even remember how long we have been on the waiting list. During that time life has just been so hard. I worry all the time. ”

John (55), Intellectual Disability, Shelby County

My biggest complaint is that people like us need help. Whenever they [policymakers] go to cut that budget it’s always the people with disabilities who get hurt by it. They’re the ones that need it. They can’t do for themselves. I don’t think that’s right.”

Kaden (1), Other, Loudon County

We have been through a lot of doctors, and we’ve finally found the ones I like. None of them say, “He can’t do this” or “He won’t be able to do that.” None of them have ever said that because I wouldn’t go back to them if they did. ”

Lauren (21), Autism, Blount County

Why can’t schools treat people with disabilities like they have a future?”

Grayson (21), Cerebral Palsy, Cumberland County

After a certain point you say this is what we are. Let’s just be a family and let’s just live.”

Margo (27), Katherine Ann (25), developmentally delayed, Shelby County

I am not a planner but my sister and my niece wish that I was since they might be guardians one day. I must plan for the future care of my daughters. This is very hard for me. ”

Dylan S (19), Autism, Gibson County

We've been on the wavier list for about 10 years with no help in sight.”

Dylan (16), Autism, Gibson County

For the last several years I have been unable to keep a job because I have no one to care for him after school, holidays or summer break. My husband works full-time and as of now that is the only income we have to support a family of five. Without my income we have been faced with; utilities, gas, water and phone being cut off. ”

Louie (9), Angelman syndrome, Davidson County

My son needs physical therapy, occupational therapy, and speech therapy. Therapy and childcare are expensive and time-consuming. ”

Leisa (51); Grace (17), Autism, Davidson County

Tennessee, you see, is a Southern state governed by legislators who do have time to pass laws granting it legal to take home road kill but leave little for those of us struggling to provide for our children with disAbilities.”

Kora (4), Other, Davidson County

“The public school system is preoccupied with passing the problem down…when it comes to dealing with the educational system, parents must be courageous and willing to battle.””

Kelly (Age 36), Cerebral Palsy, Wilson County

I wish Kelly had been able to stay in school beyond the age of 22, because there was so little available for her once she got out. ”

Kimberly (Age 24), Cerebral Palsy, Davidson County

It’s like the state just says, 'OK, you’re 21, we forget about you.'”

J.T. (Age 18), Autism, Montgomery County

What is helpful to one person with autism is not necessarily workable for another. Therefore, any policy or view that attempts to compartmentalize people with autism may be ineffective. ”

Joey (Age 13), Autism, Davidson County

When Joey was first diagnosed with autism, I came across an article that said children with autism oftentimes grow up with very few friends. That hurt. I look to his school as a place where he can be with others. When he is out of school, I hope we will find new places where he can be with his peers.”

Dylan (age 3), Down Syndrome, Wilson County

There is a deficiency of well-trained special education teachers and general education teachers should be more knowledgeable about disabilities as well.”