Tennessee Kindred Stories of Disability

A collection of stories from individuals with disabilities, families, friends, and disability service providers in Tennessee



24 Stories Found

Showing stories 1 - 20 of 24

Results related to: Future Concerns / Student interview of parent

Lilian (25), Down syndrome, Wilson County

Every father deserves to know what will become of his child once he is no longer able to provide for their needs anymore. ”

Whitney (22), Developmentally Delayed, Coffee County

Debi says she is scared about what is going to happen when she is not around to care for Whitney. ”

Sharmane (38), Down syndrome, Davidson County

Sharmane’s IQ cannot predict how much she has been able to achieve and learn.”

Ginger (24), Cerebral Palsy, Davidson County

Lots of parents in the rural areas get lost and overwhelmed by the laws and what the rights are.”

Adelai (15), Intellectual Disability, Davidson County

In terms of educational instruction, Adelai’s IEP was ignored.”

Kevin (12), Autism, Shelby County

Kevin is looking forward to working just like anyone else.”

Deshaun (5), Autism, Williamson County

I don’t think we should just settle for our kids learning how to clean their clothes and cook. I want my son to learn what it is to earn a paycheck, to drive, all that stuff.”

Charlotte (0), Other, Davidson County

Everybody needs to feel a part of something. My daughter is no different.”

Heath (3), Down syndrome, Davidson County

So while the parent is looking at the individual the government is more concerned about how to pair down the costs. ”

Jeff (47), Cerebral Palsy, Davidson County

If my son had been in a regular school system…he might be able to do some things he can’t do now.”

Michael (43), Other, Davidson County

My basic hope and prayer is that I outlive my son.”

Stephanie (28); Jessica (26), Intellectual Disability, Davidson County

In just six years, the girls had eight different special education teachers. By the time they got used to one teacher, they would get new one.”

Morgan (14), Autism, Davidson County

Morgan and Allison each have something unique to offer the world. As parents, we want to do everything we can to help them reach their potential. Our goals for our daughters may be different, but the dream is the same. We want them both to lead happy and fulfilled lives.”

Rachel (17), Down syndrome, Davidson County

I wish there was more research on what happens to individuals with a disability once they become adults. It is not very clear what is to be expected after their twenties, and this lack of clarity leaves many families in the dark and scared for their child’s future.”

Evan (13), Autism, Davidson County

There is a huge need for teacher training in educating children with autism, and this training is needed both for special education teachers and especially for general education teachers. Also, the State of Tennessee must start helping serve the needs of individuals on the autism spectrum. It is shameful how little our State does to help people on the spectrum to live as full participants in their own communities.”

Brian (11), Down syndrome, Davidson County

If there won’t be an accurate score, then why should he take an IQ test? We didn’t want a number on the front of his Individualized Education Program (IEP) plan.* We want someone to flip the page and read all about him and not just assume what their expectations should be based on that number.”

Jake (0), Traumatic Brain Injury, Davidson County

I just want my son to have the opportunity to decide among any options that anyone else would have—sports, college, girlfriend, friends, and the list goes on.”

Kora (4), CHARGE Syndrome, Davidson County

The public school system is preoccupied with passing the problem down…when it comes to dealing with the educational system, parents must be courageous and willing to battle. ”

Kora (4), Other, Davidson County

“The public school system is preoccupied with passing the problem down…when it comes to dealing with the educational system, parents must be courageous and willing to battle.””

Kelly (Age 36), Cerebral Palsy, Wilson County

I wish Kelly had been able to stay in school beyond the age of 22, because there was so little available for her once she got out. ”

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