Tennessee Kindred Stories of Disability

A collection of stories from individuals with disabilities, families, friends, and disability service providers in Tennessee



21 Stories Found

Showing stories 1 - 20 of 21

Results related to: Future Concerns / Davidson County

Maria (18), Blind, Davidson County

Like any other teenager, she loves her family but eagerly awaits full independence. ”

Louie (13), Angelman syndrome, Davidson County

We have services now but we pay for everything out of pocket. ”

Mark (42), Autism, Davidson County

I feel like if we got waiver services today it would be like being let out of prison. ”

Edward (24), Down syndrome, Davidson County

My favorite part of my job is just getting things done and having a smile and having a good attitude. I am a go-getter. ”

Sharmane (38), Down syndrome, Davidson County

Sharmane’s IQ cannot predict how much she has been able to achieve and learn.”

Adelai (15), Intellectual Disability, Davidson County

In terms of educational instruction, Adelai’s IEP was ignored.”

Charlotte (0), Other, Davidson County

Everybody needs to feel a part of something. My daughter is no different.”

Heath (3), Down syndrome, Davidson County

So while the parent is looking at the individual the government is more concerned about how to pair down the costs. ”

Jeff (47), Cerebral Palsy, Davidson County

If my son had been in a regular school system…he might be able to do some things he can’t do now.”

Michael (43), Other, Davidson County

My basic hope and prayer is that I outlive my son.”

Stephanie (28); Jessica (26), Intellectual Disability, Davidson County

In just six years, the girls had eight different special education teachers. By the time they got used to one teacher, they would get new one.”

Morgan (14), Autism, Davidson County

Morgan and Allison each have something unique to offer the world. As parents, we want to do everything we can to help them reach their potential. Our goals for our daughters may be different, but the dream is the same. We want them both to lead happy and fulfilled lives.”

Rachel (17), Down syndrome, Davidson County

I wish there was more research on what happens to individuals with a disability once they become adults. It is not very clear what is to be expected after their twenties, and this lack of clarity leaves many families in the dark and scared for their child’s future.”

Brian (11), Down syndrome, Davidson County

If there won’t be an accurate score, then why should he take an IQ test? We didn’t want a number on the front of his Individualized Education Program (IEP) plan.* We want someone to flip the page and read all about him and not just assume what their expectations should be based on that number.”

Jake (0), Traumatic Brain Injury, Davidson County

I just want my son to have the opportunity to decide among any options that anyone else would have—sports, college, girlfriend, friends, and the list goes on.”

Kora (4), CHARGE Syndrome, Davidson County

The public school system is preoccupied with passing the problem down…when it comes to dealing with the educational system, parents must be courageous and willing to battle. ”

Louie (9), Angelman syndrome, Davidson County

My son needs physical therapy, occupational therapy, and speech therapy. Therapy and childcare are expensive and time-consuming. ”

Leisa (51); Grace (17), Autism, Davidson County

Tennessee, you see, is a Southern state governed by legislators who do have time to pass laws granting it legal to take home road kill but leave little for those of us struggling to provide for our children with disAbilities.”

Kora (4), Other, Davidson County

“The public school system is preoccupied with passing the problem down…when it comes to dealing with the educational system, parents must be courageous and willing to battle.””

Kimberly (Age 24), Cerebral Palsy, Davidson County

It’s like the state just says, 'OK, you’re 21, we forget about you.'”