Tennessee Kindred Stories of Disability

A collection of stories from individuals with disabilities, families, friends, and disability service providers in Tennessee



21 Stories Found

Showing stories 1 - 20 of 21

Results related to: Health Care

Steve (61), Cerebral Palsy, Blount County

Even after coping with and recovering from spinal fusion surgery, Steve’s greatest current need is dental care. ”

Nolan (5), Other, Cheatham County

People don’t really understand that when you’re taking care of a child with disabilities, you don’t have the same kind of life. ”

Christopher (18), Cerebral Palsy, Shelby County

It’s overwhelming to go to the school, and feel like you have to get down on your hands and knees and beg for services you know your children should have. ”

Joshua (8), Other, Hamilton County

I don’t want to burden Joshua, but at the same time I want him to know he is a part of his success story. ”

Michael (39), Intellectual Disability, Scott (35), Intellectual Disability Cumberland County

We knew our sons needed to live apart from us before it was a forced event. ”

Sharmane (38), Down syndrome, Davidson County

Sharmane’s IQ cannot predict how much she has been able to achieve and learn.”

Charlotte (0), Other, Davidson County

Everybody needs to feel a part of something. My daughter is no different.”

Adelaide (14), Intellectual Disability, Davidson County

As a strong advocate for justice, Adelaide’s mother believes that there are many improvements that can be made in order to make the lives of children and families of someone with a disability better.”

Matthew (11) John Michael (7), Other, Dickson County

Because the disability is part neurological and part developmental, it’s a piece of a lot of different puzzles. I don’t think that anyone has really studied it enough to know what it is.”

Dylan S (19), Autism, Gibson County

We've been on the wavier list for about 10 years with no help in sight.”

Sharmane (38), Down syndrome, Davidson County

Sharmane is 38 now, and I would love to take her back to those doctors and nurses who told me she wouldn’t be able to accomplish anything, and show them how wrong they were!”

Jeff (47), Cerebral Palsy, Davidson County

If my son had been in a regular school system…he might be able to do some things he can’t do now.”

Rachel (17), Down syndrome, Davidson County

I wish there was more research on what happens to individuals with a disability once they become adults. It is not very clear what is to be expected after their twenties, and this lack of clarity leaves many families in the dark and scared for their child’s future.”

Diego (9), Autism, Montgomery County

There should be strict laws for the day care centers to protect my child from being turned down because he has a disability.”

Mitchell (17), Other, Maury County

Our family is in need of caregiver supports. I am a single mom and cannot afford to pay for someone to care for my son. My teenage daughter has been his caregiver. This is not fair to her. ”

Jonah (Deceased), Cerebral Palsy, Davidson County

If more people were able to get to know somebody with a disability, it'd be a big giant step. It changes your life. It's real easy to look away and feel sad and not do anything, but it's another thing to get involved and be real sad and then do something. Then that sadness goes away because you started doing something.”

Kelly (Age 36), Cerebral Palsy, Wilson County

I wish Kelly had been able to stay in school beyond the age of 22, because there was so little available for her once she got out. ”

Kimberly (Age 24), Cerebral Palsy, Davidson County

It’s like the state just says, 'OK, you’re 21, we forget about you.'”

Tripp (Age 21), Intellectual Disability, Williamson County

From this point on, I want you to remember that it’s your job to prepare Tripp for the path, because you cannot prepare the path for Tripp. ”

Joey (Age 13), Autism, Davidson County

When Joey was first diagnosed with autism, I came across an article that said children with autism oftentimes grow up with very few friends. That hurt. I look to his school as a place where he can be with others. When he is out of school, I hope we will find new places where he can be with his peers.”