Lilian (25), Down syndrome, Wilson County

“Every father deserves to know what will become of his child once he is no longer able to provide for their needs anymore. ”

Sharmane (38), Down syndrome, Davidson County

“Sharmane’s IQ cannot predict how much she has been able to achieve and learn.”

Heath (3), Down syndrome, Davidson County

“So while the parent is looking at the individual the government is more concerned about how to pair down the costs. ”

Rachel (17), Down syndrome, Davidson County

“I wish there was more research on what happens to individuals with a disability once they become adults. It is not very clear what is to be expected after their twenties, and this lack of clarity leaves many families in the dark and scared for their child’s future.”

Brian (11), Down syndrome, Davidson County

“If there won’t be an accurate score, then why should he take an IQ test? We didn’t want a number on the front of his Individualized Education Program (IEP) plan.* We want someone to flip the page and read all about him and not just assume what their expectations should be based on that number.”

Dylan (age 3), Down Syndrome, Wilson County

“There is a deficiency of well-trained special education teachers and general education teachers should be more knowledgeable about disabilities as well.”