Sharmane (38), Down syndrome, Davidson County

“Sharmane’s IQ cannot predict how much she has been able to achieve and learn.”

Heath (3), Down syndrome, Davidson County

“So while the parent is looking at the individual the government is more concerned about how to pair down the costs. ”

Eric (23), Down syndrome, Williamson County

“If it doesn’t seem right, I don’t care who’s telling you, if it’s not right, you make it right. You have to make it work. You do whatever you need to do. You need to always understand what your rights are and what your child's rights are, or else you may get short changed.”

Rachel (17), Down syndrome, Davidson County

“I wish there was more research on what happens to individuals with a disability once they become adults. It is not very clear what is to be expected after their twenties, and this lack of clarity leaves many families in the dark and scared for their child’s future.”

Brian (11), Down syndrome, Davidson County

“If there won’t be an accurate score, then why should he take an IQ test? We didn’t want a number on the front of his Individualized Education Program (IEP) plan.* We want someone to flip the page and read all about him and not just assume what their expectations should be based on that number.”

Meghan (Age 10), Down Syndrome, Rutherford County

“I think there are a large number of parents out there with kids with disabilities who are unaware of the services out there.”

Dylan (age 3), Down Syndrome, Wilson County

“There is a deficiency of well-trained special education teachers and general education teachers should be more knowledgeable about disabilities as well.”